Cerebral Palsy Alliance Research Foundation
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CP Quest – Community and Researchers together

CP Quest is a group of people living with cerebral palsy, their families and advocates (CP Community) who are interested in supporting and facilitating CP Research and want to collaborate on an equal level with Researchers from Cerebral Palsy Alliance.

Our group CP Quest has been formed to involve the CP Community in decisions about CP Research and to integrate your experiences into research activities.

People with cerebral palsy and their families can be the most powerful supporters and promoters of cerebral palsy research and CP Quest is bringing the CP Community and CP Researchers together.

Shannon and Ethan

My name is Shannon Clough. I am very passionate about CP Research and have proudly taken on the role as Chair for CP Quest. When my beautiful son Ethan was born at 26 weeks he was diagnosed as being profoundly deaf and having severe cerebral palsy. I, like so many parents, wanted answers and, even though I have now lost my beautiful boy, I still want those answers for people with cerebral palsy and their families. Cerebral Palsy Research is the way.

I invite you to be part of our Research Community.

You can participate in planning a study, recruiting and retaining participants, do a study, analyze the results, dissemintae the results…

Your input is important.

Please become involved in CP Quest as a Research Partner and help guide CP Research now and into the future.

Join CP Quest

As a Research Partner you can contribute to research activities which require the assistance of people with cerebral palsy and their families.

Activities might include: Giving feedback on information sheets, consent forms, questionnaires and surveys. Advising about important outcomes to measure, giving input on important research topics, …

The level and/or frequency of involvement is voluntary and will mostly be over email.

Please read the terms of reference.

To become a CP Quest Research Partner you will be required to register as a volunteer with Cerebral Palsy Alliance. We invite you to complete an expression of interest via a short survey.

The National Health and Medical Research Council and the Consumers Health Forum of Australia have released a revised joint statement reflecting the growing recognition of the place of consumers and community in health research.