Cerebral Palsy Alliance Research Foundation
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Taking Part in a Study

Seeking Participants

The Research Foundation supports research studies throughout Australia that require participants with cerebral palsy and/or their families.

If your baby is less than 6 months old and has cerebral palsy or is at-risk of cerebral palsy, they could be eligible to participate in a new brain training intervention for infants called “GAME”.  We are trying to find out whether the intervention improves movement, neuroplasticity and intelligence.

This early brain training intervention (“GAME” Goals Activity Motor Enrichment) is based on the key neuroscience principles of activity dependent plasticity and enriched environments and on successful training interventions known to work in older children with cerebral palsy and adults post-stroke.

If you choose to participate, your child will either be allocated to the GAME group or continue to receive their usual care. If you are randomised to GAME, a therapist will visit your home every week and provide advice on how to advance your baby’s learning and neuroplasticity through playtimes, setting up your home environment and choosing the right toys.

Please note that we cannot guarantee that either the GAME intervention or traditional therapy will directly benefit you child. There are no known benefits or positive outcomes for children who participate.

If you would like to find out more about the study please contact Dr Cathy Morgan on 0408205542 or email cmorgan@cerebralpalsy.org.au

Young children with dyskinetic cerebral palsy who have difficulty using their hands and have trouble speaking may learn to use eye-gaze technology to control a computer or tablet. Using a tablet or computer with an eye-gaze system can help children to produce speech, play games, draw, write, spell, do maths, read, access the internet, and control a TV, telephone and music.

Eye-gaze systems are a special camera attached to the bottom of a small computer. Nothing is attached to the child’s head or body. The camera tracks the child’s eye movements which in turn control the mouse on the tablet screen. The mouse is used to select items on the computer screen either by holding eye-gaze for a set amount of time or by blinking.

Eligibility

Researchers from Cerebral Palsy Alliance are running a study using eye-gaze technology with children aged 3 to 5 years. We will be selecting a maximum of 10 children, who meet the inclusion criteria, to participate.

If you have a child who might benefit from using eye-gaze technology, and you would like us to contact you for more information about taking part in the study, please click on the link below and we will contact you within 2 weeks.

Contact

Leave your details with us and we will contact you https://www.surveymonkey.com/s/eyesoncomm

Dr Petra Karlsson
Phone: 02 9975 8098
Email: pkarlsson@cerebralpalsy.org.au

Collect important clinical information to improve our understanding of cerebral palsy. The CP register monitors the prevalence of cerebral palsy and evaluates the effectiveness of current and future interventions aimed at treatment or prevention.

Eligibility

Anyone with cerebral palsy born or living in NSW/ACT. There are no age limits.

Contact

Dr Sarah McIntyre
Cerebral Palsy Alliance
187 Allambie Road, Allambie Heights NSW, Australia
Email: cpregister@cerebralpalsy.org.au

Become a Research Partner

Join CP Quest. As a Research Partner you can contribute to research activities which require the assistance of people with cerebral palsy and their families.