Cerebral Palsy Alliance Research Foundation
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Taking Part in a Study

Seeking Participants

The Research Foundation supports research studies throughout Australia that require participants with cerebral palsy and/or their families.

For teenagers with acquired brain injuries (ABI) or cerebral palsy (CP), making and maintaining social networks can be a challenge. This study aims to determine if the PEERS® program can improve their social skills and their ability to make and maintain friendships.

 

Who can participate? Teens who:

  • Are 11 to 17 years of age and attend mainstream high school
  • Have a diagnosis of acquired brain injury (at least 12 months post ABI) or cerebral palsy.
  • Have difficulty with social skills and making and maintaining friendships.

 

What is involved?

The PEERS® program is comprised of 14 weekly sessions of 90 minutes, led by a therapist. The program is delivered to 10 teens, while a concurrent parent group is run in a different room.

This program will start in February 2018 at Cerebral Palsy Alliance Ryde, Mondays from 5pm to 6:30pm .

 

Benefits:

  • The program may enhance your teen’s social skills and help develop their skills to make and keep friends. As a result this may improve their long term psychological well-being and quality of life.
  • You will be assisting us to gather information that may influence the way social skills training for teens with ABI or CP is delivered and provide better outcomes for their future.

If you would like to find out more please contact: Isabelle Balde – ibalde@cerebralpalsy.org.au – 02 9975 8928,  Dr Sarah McIntyre – smcintyre@cerebralpalsy.org.au or Dr Hayley Smithers-Sheedy – hsmitherssheedy@cerebralpalsy.org.au

Researchers from Cerebral Palsy Alliance are working with colleagues in Victoria and Western Australia to evaluate wrist/hand orthoses used with children with cerebral palsy who have tightness of the muscles of their hands. The study will investigate whether wearing an orthosis on the hand at night supports growth and development of hand muscles, by providing the muscles with a long stretch. We want to know if orthoses support movement, muscle tone and function in the hands.

Eligibility

If you have a child with cerebral palsy aged 0 to 35 months or 5 years to 15 years with tightness in the muscles of the hands and would like to hear about the studies please make contact with us in one of the following ways.

Contact

Leave your details with us and we will contact you https://www.surveymonkey.com/r/Orthoses_Studies

Ali Francis
Phone: 0475 984 865
Email: afrancis@cerebralpalsy.org.au
Dr Margaret Wallen
Phone: 02 9975 8808
Email: mwallen@cerebralpalsy.org.au

Young children with dyskinetic cerebral palsy who have difficulty using their hands and have trouble speaking may learn to use eye-gaze technology to control a computer or tablet. Using a tablet or computer with an eye-gaze system can help children to produce speech, play games, draw, write, spell, do maths, read, access the internet, and control a TV, telephone and music.

Eye-gaze systems are a special camera attached to the bottom of a small computer. Nothing is attached to the child’s head or body. The camera tracks the child’s eye movements which in turn control the mouse on the tablet screen. The mouse is used to select items on the computer screen either by holding eye-gaze for a set amount of time or by blinking.

Eligibility

Researchers from Cerebral Palsy Alliance are running a study using eye-gaze technology with children aged 3 to 5 years. We will be selecting a maximum of 10 children, who meet the inclusion criteria, to participate.

If you have a child who might benefit from using eye-gaze technology, and you would like us to contact you for more information about taking part in the study, please click on the link below and we will contact you within 2 weeks.

Contact

Leave your details with us and we will contact you https://www.surveymonkey.com/s/eyesoncomm

Dr Petra Karlsson
Phone: 02 9975 8098
Email: pkarlsson@cerebralpalsy.org.au

Collect important clinical information to improve our understanding of cerebral palsy. The CP register monitors the prevalence of cerebral palsy and evaluates the effectiveness of current and future interventions aimed at treatment or prevention.

Eligibility

Anyone with cerebral palsy born or living in NSW/ACT. There are no age limits.

Contact

Dr Sarah McIntyre
Cerebral Palsy Alliance
187 Allambie Road, Allambie Heights NSW, Australia
Email: cpregister@cerebralpalsy.org.au

Researchers from Cerebral Palsy Alliance, The Sydney Children’s Hospital Network and The University of Sydney are working together to understand the effects of parechovirus infection (HPeV) in the first 6 months of life. This study will investigate children’s development between ages 3 to 3 ½ years or more to provide new knowledge about the outcomes following HPeV infection.

Eligibility:

If you have a child age 3 to 3 ½ years or more who had parechovirus infection in the first 6 months of life and were admitted to a hospital in NSW, and would like to hear more about this study, please contact one of the following investigators:

Contact:

Dr. Karen Walker:  02 9845 2712 karen.walker@health.nsw.gov.au  or

Dr. Hayley Smithers-Sheedy: 02 9975 8000 hsmitherssheedy@cerebralpalsy.org.au

This project has been approved by SCHN HREC (HREC/16/SCHN/410) and CPA HREC (2017-03-02) Service Research Ethics Manager, Secretary of the Ethics Committee (02 9845 3066). HREC/16/SCHN/410